Upon my diagnosis, the endocrinologist I was sent to helped me get things under control fairly quickly. For the first several years, I had very good luck with my blood sugars. Perhaps I was in the honeymoon period. But I also was (and still am) disciplined when it comes to diet, exercise and taking 4 shots of insulin daily.
When Fermin (my husband) and I moved from Coppell to Dallas, I decided to go to a different endocrinologist that would be closer to my new neighborhood. He was rated one of the top doctors in his field in the area. I didn't personally like him as much as my first doctor, but he was fine. I mainly needed an endocrinologist for the sole purpose of prescribing my insulins and testing supplies because I was doing a relatively fine job staying in control of everything diabetes related.
But after a few years, I got tired of sitting in that stupid waiting room 1 1/2 - 2 hours each time I had an appointment. I remember one day in particular, I had been waiting well over an hour. The receptionist opened the little window and said, "Kerri, you can come on back to the room even though Dr. L is still at lunch. He should be in shortly." He wasn't even there all that time I had been waiting?? I was so mad. While I was in that tiny room, waiting for him, I was getting more and more furious. After an additional half hour or so, I walked out and told them I had to leave. Right at that moment, he walked in the door and said, "Ok, you ready?" and I replied meekly, "Yes..." without complaint. But I never went back to his office again.
I've going to my 3rd endocrinologist for the past 7 years or so. I haven't really asked for much help, because I didn't think I needed it. Again, this doctor was fine, but I didn't love him either. To be honest, I hadn't even seen him in the last several years, but was instead just making all of my appointments with his PA. I liked that guy personally- But.
But I've come to realize that just because my A1C has hovered from 6-6.8% the last few years, my blood sugar is not in good control at all. Thanks to the Dexcom, I've become very aware of how often I'm in a range that's either too high or too low. And it's way too often!
I think because of that decent looking A1c, my endocrinologists have left me on autopilot assuming I'm doing a good job keeping things related to my diabetes controlled. But that A1c is only a small window, and it only shows part of the picture. The Dexcom has shown me so much more.
|my highs and lows during a typical day shown on my Dexcom cgm|
A few months ago, I attended Type 1 Nation event hosted by JDRF, which was an all day event with different speakers about all things diabetes. I learned so much that day. I heard about new types of drugs being used with Type 1 diabetics, tips about when to take insulin prior to eating, about insulin pens that have 1/2 unit dosages and come with a memory, etc. Most importantly, I learned that some of these new things weren't even that new- I just hadn't heard about them.
I decided it was definitely time for a change. I really think, if given all the information and tools possible, I can get my diabetes in better control than it has been the past few years. I am ready to find a "team" who is eager to help me.
And I just may have found them.
I wrote about my first appointment a couple of weeks ago at Diabetes America in a previous blog post.
Think Like a Pancreas by Gary Scheiner (which I'm reading now and loving it-- more on that in a future post for sure!), "The nice thing about teamwork is that you always have others on your side."
And ultimately, that is why I went looking for a new endocrinologist.